Sunday, July 5, 2015

Starting Over

So... hopefully tomorrow morning we'll be saying " this is day one of another seizure- free streak" or some variation thereof. Today I was contemplating what I'd do all day after I managed to haul my lazy butt out of bed. Then, even though I was hearing aid-less , I heard familiar rumblings down the hallway and once I finished my race to Michael's bedroom---well--- there he was face down on the mattress in the throes of a damn seizure. So our 8 week streak is over. I sat on Michael's bed, scrunched against the wall looking at the clock, waiting for the tonic movements to stop, watching his lifeless eyes hugely dilated, holding his hand---waiting. It only lasted a minute that I observed. His heart rate slowed, his breaths became less labored, more regular, he settled into a pretty peaceful sleep. Katie took my place on the bed---exactly where she was when I walked in the room! We'll have to practice more "get helps", I thought. These streaks of 8, 9, 13 weeks have made us somewhat complacent. Mea Culpa!
I didn't cry. I didn't feel discouraged. We didn't have a lot of streaks like this in the years before CBD oil. We certainly weren't able to reduce the miserable pharmaceuticals the way we have since being on CBD oil. We did not have the brighter, more aware Michael we see far more often these days. We're not where we want to be, but we'll take this as we patiently make our way.
We'll take this!

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