September 9th, 2014- 1st dose of Realm of Caring CA CBD oil. December 9, 2014 first lengthy early morning tonic seizure since starting the oil. Neurologist is confident enough to start a Lamictal wean in late November.
January 14, 2015. Another early morning tonic seizure. Parents note bedtime meds were not taken the night before. Duh! This one has a reason for happening and parents not happy with themselves.
Managed to decrease daily dose of Lamictal by 200 mg. January labs indicated a real jump in Felbatol level. Now working on decreasing Felbatol by 200 mg every two weeks with "check-in" to neuro when down by 600mg.
So..... Happy, very happy with the decreased frequency of the nasty morning seizures. Happy, really happy with the quick recovery when they did occur. Grateful to be part of the RoC community and hopeful that CBD oil may indeed be the answer in our case.
But can I just say this? Drug withdrawal is a BITCH. Enough said. For now.
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